Being a caregiver is so vitally important. You are the rock, the strength, the support when we need you. You take all our stresses, fears and worries and pull them onto yourself. You sacrifice your own health for us to get well. There are no praises high enough to glorify how truly amazing I find caregivers. I love you all more than you could ever know. I had two wonderful caregivers when I was sick: Fish and Angel. They helped me immensely when I was sick and I have asked them for their help with this section for the first site.
Check out the advice section for more specific Caregiver advice, but a few tips that I have found useful are:
Always keep a bag in your car with everything you could possibly need. We found out first hand many times on my journey that to be prepared is always the best way to be, those boy scouts got that right!
So, keep extra medicines such as stomach, anti diarrheal, stool softeners, a thermometer, band aids and first aid crème, antibacterial wipes/liquid, gauze, and any other meds that could possibly be needed. Also put in extra clothes, comfortable shoes, a blanket (which mine is just sitting in the back seat), and snacks. This bag could come in handy for any kind of embarrassing situation or could be useful for a survivor in many ways. For instance, I got cold very easily, being in treatment in the summer, the air conditioner was always on everywhere but I was freezing, this blanket kept me warm so many times (thanks Kris’ Mom!).
The stomach gets hit hard with chemotherapy, one minute you feel fine, the next nauseous, one minute you’re running to the bathroom, the next you couldn’t go if they paid you! Always plan for the worst and hope for the best! I had issue with my muscles being very weak so I wore pajama pants and a zip up jacket a lot because they were easy to put on with little help. Always plan for the worst and hope for the best!
Other useful items would be plastic bags, a plastic bottle or cup that is light weight, lots of Chapstick or lip balm of choice, lotions, an eye mask to block out light if you get tired or especially if you are in the hospital, candy and gum to suck on or for snacking if you want to keep from having a full meal (try sugar free as it will keep your teeth in good shape!), also make sure you take your stuffed animal with you wherever you go. As you can see from my pics my Monkey is with me everywhere I go.
These are just a few things you may need but each will be different, if you are doing Radio Active Idoine treatments anything you wear will need to be thrown away, so head on over to Goodwill and pick yourself up some fun items that you don’t mind losing.
Again, I LOVE Caregivers! But there is so much that you need to understand for your own health and sanity. You must take care of yourself in order to be there for us. We love you too much to see you suffer!
While this area is titled ‘Caregiver Page’, the whole site is set up for survivors and their caregivers so, please make sure to check out all the areas because there is so much more to find on this site. Please make sure to look over the whole site but if you cannot find what you are looking for, please drop me a line and let me know and I will help you!
One important thing I do not cover everywhere else even though it pertains to everyone is a living will. Everyone needs to have a living will, this is the only way you will know what your survivor's last wishes are. They may seem morbid to others but it is a fact of life. Everyone is going to die eventually. You need to make sure their wishes are documented. Check out this website to make a living will for your family.