The scariest part of cancer for a lot of people is that gianormous bill that you are incurring. Even if you have insurance you still have copays and prescriptions cost. Not to mention the real life cost such as rent, car payments, utilities and food! The sheer weight of the world when you have cancer can be quite overwhelming, so the best thing to do is to start as early as possible in the process. As the cancer journey goes on, it could become harder and harder to find the energy and drive t do it all. So, I have done my best to try and put as much aid information as possible here. Clicking the image will open the site up in a new window
Aid that is available for all states
The first place to start is with Social Security. SSI (Supplemental Security Income) is what I received and it is more than likely what most Young Adults will receive as most of us just haven’t made enough money in our lives to qualify for Social Security. It is LONG process, and you will have to go to at least one interview but hold your ground, tell them how your treatment is affecting you and you should have no problem, however IF you are rejected, APPEAL, APPEAL, APPEAL. Do not take it lying down. SSI might not be a lot and you might have to go through the ringer to get it, but during your treatment money should be the LAST thing on your mind and when you qualify for SSI you also get the medical card (Medicaid) which pays for your medical bills, and you are also pretty much guaranteed Food Stamps (at least from my experience)
Social Security is not based on income and is instead based on how much you have paid into social security. A lot of times young adults are not eligible for social security since they have not paid in enough. However, if you think you can get social security check out the SS site directly.
However, if you think you can get social security check out the SS site directly. One thing I will add though is both SSI and social security are not nearly enough to live off of. I think I received around $405 and I know that SS for a 37 year old who worked from the time he was 16 only gets a little over $500. You will have to find more aid in order to make your bills if you are unable to work.
I got my assistance through the Department of Rehabilitation Services but this is the national level equivalent. However, you should look up DRS and then your state. When you are in remission and feeling like you want to get back into work or get back to school to get a job and have a disability as a result of your experience check out if there is a local Department of Rehabilitation Services in your area. They will sit down with you and help you figure out where you want to be and how they can help you get there. My counselor was awesome and helped me pay for tuition for 3 years; I only had to drop out after they couldn’t help me anymore. They paid for my school, but at an IL tuition rate which was nice because I could work and go to school online but it still left a balance which needed to be covered by loans.
HRSA is an online map that will tell you where the closest government clinic is to you. It is searchable by zip code and while I do not know how this works now that the affordable healthcare act has passed but I think it should be useful for those in need. They base your bill on your income and this could be really helpful if you find yourself with lacking insurance. They offer:
Checkups when you are well
Treatment when you are sick
Complete care when you are pregnant
Immunizations and checkups for your children
Dental care and prescription drugs for your family
Mental health and substance abuse care if you need it
Clickable Map of Department of Human Services Sites!
The map below is to state aid through DHS, this includes food stamps, utility assistance and more depending on your state.
Clickable Map of 211 Aid Sites!
The 211 sites above will connect you directly with local aid places by your state. This is where you will find food banks, rent assistance, utility aid, and other available aid. The fastest way to find local aid is to start at the 211 sites above.
Cancer Specific Aid Sites
Helping people afford insurance co-payments to cover the cost of chemotherapy and cancer medications. They provide easy same-day approval through their state-of-the-art platform. You will always know the same day whether you’re approved.
The NeedyMeds Drug Discount Card may save you up to 80% off the cost of your prescriptions, OTC medications and pet prescriptions purchased from a pharmacy. They also have a generic drug assistance program as well.
Offering prescription help as well as helping you find access to clinics. They help connect you with hundreds of private and public assistance programs.
HealthWell fills the gap. We assist patients living with chronic and life-altering illnesses in paying their share of prescription drug copayments, deductibles, and health insurance premiums.
Flight / Travel Assistance
One more prescription help site PAF Co-Pay Relief (CPR) provides direct financial assistance to qualified patients, assisting them with prescription drug co-payments their insurance requires relative to their diagnosis.
Corporate Angel Network is the only charitable organization in the United States whose sole mission is to help cancer patients access the best possible treatment for their specific type of cancer by arranging free travel to treatment across the country using empty seats on corporate jets.
Their volunteer pilots fly for free of charge those who turn to them for help in getting to hospitals to receive much needed medical care.
Offering ground transportation on places less than 300 miles, air travel for treatment over 750 miles, and private flights to specialty treatments less than 750 miles. If you need help getting to your treatment they are the place to turn.
The American Cancer Society offers assistance through Hope Lodges. Each Hope Lodge offers cancer patients and their caregivers a free place to stay when their best hope for effective treatment may be in another city.
Joe's House is a nonprofit organization providing an online nation-wide list of places to stay to assist cancer patients and their families find lodging near treatment centers.
Extended Stay America formed a lasting partnership with the American Cancer Society, donating 40,000 hotel stays in 631 U.S. locations. They offer free rooms to cancer patients that have to travel for their treatment.
A nationwide professional association of nearly 200 unique, nonprofit organizations that provide lodging and support services to patients, families and their loved ones who are receiving medical treatment far from their home communities.
Food Help (Outside of Food Stamps)
The Feeding America nationwide network of food banks secures and distributes more than 3 billion meals each year to communities throughout the United States and leads the nation to engage in the fight against hunger.
OneHarvest is a non-denominational, faith based organization that is committed to helping American families. We offer affordable, pre-paid, pre-packaged, high quality food boxes.
Use this link for locating food and other resources in your area
They focus on serving people who are sick and need nutritious food to support their medical treatment. They offer meals, groceries, and nutrition counseling and education.
Other Aid for Survivors
A resource directory for cancer survivors to find financial assistance
The only motive behind this site is to help the less fortunate in our community and absolutely no tax benefit is received for the Wishes fulfilled
A Silver Lining Foundation's Vision is to ensure that socioeconomic status does not affect an individual's ability to obtain information, timely cancer screening and diagnosis.
The American Society of Clinical Oncology started this amazing website to discuss the issues that face newly diagnosed survivors. Managing the Cost of Care Guide PDF
The Final Point
I must make a very BIG point here that there is no time for foolish pride when you are sick. I understand that you may never have been on a social service in your life and you may be the hardest working person there ever was but now you need help. Swallow that pride and get to work on those applications! There is absolutely NO shame in getting help when you need it, don’t ever let anyone tell you differently. I had to fight to get my rent paid because my landlord (Butzirus Rental Properties of Bloomington, IL) refused to take the aid as he thought it was Section 8 and they don’t accept Section 8! He refused to answer my calls and I actually had to have my case worked at the City Hall step in to get them to fill out the paperwork to take the money. These social programs are set up to help people when they most need it and now is your time!As I read in a great book called Cancer for $5 a Day *Chemo no included (Look for review in the Book Blog Post!), now is the time to be selfish and it was a doctor telling him this. It is completely true, it doesn’t matter if you have been taking care of everyone your whole life, now is your time to make decisions that benefit you, take the time to be selfish, it could cost you your life if you don’t.
Links are always changing!
So make sure to let us know when you find one that is broken or out dated, or if you find one that is not listed but you think it should be on here.